Tag Archives: Disesase

It’s That Time Again – February 28 is World Rare Disease Day

You may remember my post from this time last year February 28 is World Rare Disease Day….our almost 3 year old grandson Liam has multiple rare medical conditions resulting from a craniopharyngioma brain tumor at the age of 16 months … Continue reading

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February 28 is World Rare Disease Day

Today is World Rare Disease Day. Before Liam, our 1 year old grandson, we didn’t even know there was such an event celebrated to help create awareness for the need for continued research and funding for research to help those … Continue reading

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